CCSVI was discovered in 2009. It may help you or someone you love. Chances are you know someone with a circulatory problem, anxiety/depression or other "behavior disorder", autoimmune or chemical imbalance. Please pass on to others.
CCSVI makes your body deteriorate faster than people who do not have the issue. It stands for Chronic Cerebralspinal Venal Insufficiency. Veins in the neck, heart, and now transmandible area shrink or constrict (from damage, birth defects, cold, etc.) clog partially or entirely and blood can not drain from the brain or other areas properly. The way this effects you depends on what is in your blood - extra iron from red meat can do a lot of damage (heavy metals are very damaging); other types of toxins do different types of damage. This leads to free radicals breaking down tissue where there is stagnate blood. Sometimes the blood even reverses and travels back down it's path. This started as as an MS discovery, because MS cadavers brains have so much iron built up. Aluminum is what is found in Alzheimer's patients' brains. Doctors once thought this was a bi-product of the diseases, but now it is being considered as the cause.
I put this blog together with links to different research. My purpose is to continue sharing info as it becomes available, and make everyone aware of this new research and treatment. Permanently damaged areas may not heal themselves, but the process of degeneration may be slowed down or stopped.
My search for the cause of my own deterioration started 18 months ago. I had an accident April 2010. I developed TMJ from cracking a tooth and having one side of mouth filed down until I could see my dentist, Dr. Berman (who is the best). I had increasing anxiety, pressure, neck and back issues over the next few months; then auto-immune symptoms. I've discovered the issue may be CCSVI. Read on to find out more. I am going to a clinic in Costa Mesa, CA for treatment as soon as my insurance is approved and/or I've lobbied for a change in how this relatively new discovery is handled by insurance companies. I will probably have to call BCN several times daily to get this moving. Please check this blog monthly to follow progress and get contact info for senators, insurance companies, etc.
I am hoping to go to VAS for treatment. The diagnostics, confirmation, procedure and recovery takes 4 days. I've listed the only vascular center that I've found to take insurance. Also, they have the highest success rate (up to 80%) because of the thorough imaging and other testing for blockages. Here is the link to who my PCP will hopefully refer: http://www.vascularaccesscenters.com/PublicPages/Home.aspx
Here is a link to other facilities in the US: http://ccsvicare.com/contact-us/ccsvi-locations/
There are other facilities available, but none in MI at this point. Wayne State does have a research program (and likely diagnostics). My suggestion is to go where the specialist is in your area, and start insurance rebuttal early, as this condition was only discovered in 2009 and easy to turn down by insurance by citing "research stages". Don't back down. I only heard about this because a friend of a friend with MS was successful getting it covered by her insurance. She's also vastly educated me on the procedure, differing approaches, time the procedure lasts, etc.
No comments:
Post a Comment