Why didn't my doctor check for this? The week of Thanksgiving I take my BFF from NY out to lunch. She tells me her friend had MS and a lot of pain in her neck. It turns out she had vein blockage in her neck. She had MS and she pursued this experimental treatment in Pennsylvania.
The short version of it is this: It was too new! I was checked for carotid artery issues from the accident. My arteries and heart are working perfectly. The arteries pump blood from the heart to through the body. The blood pressure is regulated. In CCSVI, the veins become restricted in the neck and or heart from shrinking (damage, plaque, bone compression, genetic issues like small veins) and clog like a drain, leaving behind toxins in the brain, specifically iron. The are not always clogged. People have good days - then there are those times when you just "space out".
MS cadavers have an excess of iron in their brains. The iron begins to damage the cells through free radicals. The treatment is to treat the veins with an angioplasty-type procedure and leave a stent in if needed to keep the vein from collapsing. To know if you have the issue of small or damaged veins, an MRI and MRV needs to be done (with contrast) with key timing of the veins in question. My doctor did "doppler readings" which show nothing - they need to actually see the balloon-looking pooling of your veins. If you have a combination of issues and suspect CCSVI, search "CCSVI" and your issue in Google. That's what I did.
Here are some links if you are interested in doing more research:
http://www.ctv.ca/CTVNews/WFive/20091120/W5_liberation_091121/
Intro - since this, venal issues found in others without MS but who have other vascular/auto immune issues
http://www.youtube.com/watch?v=iJ9bv7jx-Ls
I have issues going from standing up to lying down. Some people have head rushes going from lying down to standing up, but my issue was the opposite - because I put pressure on my neck.
http://www.facebook.com/note.php?note_id=258642937489910
This study was presented Sept. 2011 at a conference and shows a link between CCSVI and TMJ
http://www.nationalmssociety.org/news/news-detail/index.aspx?nid=2206
Originally published as an MS treatment, it is now much more
https://www.inspire.com/groups/ehlers-danlos-national-foundation/discussion/ccsvi-confirmed-at-my-daughters-cause-of-pots/
Pots syndrome is a catch-all for symptoms like dizziness, not being able to turn head or stay in one position for long, tinnitus (not related to ear problems), etc.
More on pots:
http://en.wikipedia.org/wiki/Postural_orthostatic_tachycardia_syndrome
CCSVI and sinus issues - cranial pressure - issue can be found in more than the neck and heart:
http://www.youtube.com/watch?v=Z-um5urtjNs
Thanks for great information you write it very clean. I am very lucky to get this tips from you.
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